On Tuesday I was hit by an Exhaustion Tsunami. Looking back it wasn’t completely unexpected, all the warning signs were there.
Last Wednesday Chloe had her annual Echo which required her to be sedated. The medication was a oral sedative, which I was warned may not stay down and sure enough Chloe didn’t keep much of it down. Chloe was drowsy but not really in the ideal relaxed state for the Echo. Long story short the results were that the existing hole is getting smaller, there were no other concerns. The Cardiologist recommended seeing her in 18 months when she should be at a more co-operative age (I had to laugh at this). The rest of the day Miss Chloe would switch between being high as a kite and being drowsy but not having long naps (which I was so counting on).
On the Thursday she was okish but not completely her normal self. She was eating but did a few vomits during her lunch and dinner. This is not completely odd for Chloe as she goes through periods of being like this when eating especially when she is teething. After dinner on Thursday she had a bath she just wasn’t happy which very unusual for her, loves bath time and 
is normally a great mood afterwards. Then the vomiting which this continued on and off over the weekend. Not interested in food at all and only having small breastfeeds, she was only drink only when she was desperate. She would swing between being happily playing and full of energy to suddenly being so upset and then vomiting. Laurie and I showed no signs of coming down with a tummy bug, I started question what was actually upsetting her tummy.
Monday morning she was starting to really worry me she as gone down 250g since Thursday and was becoming lethargic. As instructed we first went to the GP who then got us sent up to the Pediatric ward for monitoring. This is the day that really drained my little remaining energy. Not knowing if they were going to admit her, constantly worrying about getting enough fluids into her and the long hours of waiting around in a cubicle all day long (we didn’t home till 10pm that night) really took it out of me. The GP and the Pediatrician agreed with me that it seemed that she didn’t have a viral bug but didn’t know what it was. I questioned if it could of been the sedation drug that had triggered the vomiting somehow but was told that it shouldn’t of. They did urine and blood tests, which didn’t show anything concerning apart from her White Blood Cells were a bit high again. They were happy to let us go home as she had started to show more interest in fluids again and we had an appointment with Chloe’s Paediatrician on the Wednesday.
On Tuesday Chloe had improved a bit, but I had not. My body put on the red light warning me I was almost running on empty. My joints were aching, was getting the cold sweats, lost my appetite, tummy aches, beyond tired but not being able to sleep . . . it made me start to think maybe Chloe did have a bug which I was starting to come down with. Laurie came home to a wife which wasn’t functioning well and a big blabbering mess. Luckily I knew that Chloe was starting to get better so I knew with a bit of help I would be able to get through it.
My mum came with me to Chloe’s Paediatric appointment, so I knew all the important questions will be asked and fill in any gaps that I might miss. Thank you so much mum for that it means a lot, you know how my brain works so I knew that you had my back. After giving the doctor a run down of what had been happening, it was a relief that he suggested that maybe it had been caused by the sedation medication and that it had inflamed Chloe’s stomach. Considering Chloe seems to have a sensitive stomach normally, it made sense that the medication just didn’t agree with her triggering the vomiting and loss of appetite. This is what I had been thinking all along so it was good to hear that he thought the same. Chloe was also way happier in herself and had started to show interest in food again. He did explain though that because she had lost 300g of weight we would have to start seeing the Dietitian more regularly again (BOOOOO!!!!) and she would need to get bloods done more frequently again. He explained that when JMML has been a issue and paired with a Syndrome, when a sickness happens it can sometimes cause the WBC count to increase again. Her Platelet levels also still hadn’t returned back to the normal levels. So it appears that we are in relapse period, he reassured me again that this can happen and it will correct itself.
Today the old Chloe has returned, eating food again and demanding lots of breastfeeds especially before bed. It’s like the newborn days of the evening cluster feeding and taking hours to get her sleep. I’m also feeling HEAPS better, the stress has lifted off my shoulders and thankfully have gotten a bit more sleep (as much as Chloe will allow). I’m looking forward to having a relaxing Easter weekend with the Hubby and our Little Miss, getting as much calories as possible into her.